Parkinson's Resources

Put a Little PEP in Your Step Parkinson’s Exercise Program

We are pleased to provide you with the following 3 links that are the final copies of our videos.
All 3 videos are available on YouTube and are also featured on the Shakers Anonymous website https://www.shakersanonymous.org/help-videos. We hope that this is beneficial for you and that you can continue this program in the future! Good luck with everything and we hope you enjoy it!

 

 

P.E.P. Tools for Success

These tools are to help you keep track of your goals and to help guide you towards success. Keep yourself motivated by planning ahead and holding yourself accountable to partaking in physical

activities.

Tools include:

  • Weekly To-Do List

    • Use this list to help organize what you hope to accomplish each day

    • This list does not have to only include your exercise plans, it can also include tasks that need to be included around your home or errands that need to be completed

  • Goal Sheet and Calendar

    • Use this sheet to set weekly goals for yourself and help organize your exercise schedule for the month

https://drive.google.com/file/d/1CGuCcgegn09jGz7jDC46xhs7_BNFORZp/view?usp=sharing

 

P.E.P. Outcome Measures Packet

For all outcome measures, please note that these values are NOT normalized for Parkinson’s Disease. Please use these outcome measures as a guide to track your improvement with

your overall time. In this outcome measures packet you will find:

  • Timed Up and Go (TUG) Test

  • Activities-Specific Balance Confidence (ABC) Scale

  • International Parkinsonian and Movement Disorder Society Unified Parkinson’s Disease Rating Scale (MDS-UPDRS)

  • A template to record your progress throughout the program

https://drive.google.com/file/d/1HpZkJft_AyYrRMcOWzVSF2F8wOTrjuyx/view?usp=sharing

 

P.E.P. Member of the Week Checklist and Certificate

Checklist:

This past week, the star of the week would have...

  • Worked out at least twice

    • Participants will track their exercise days on the calendar provided in Appendix D

  • Accessed at least two of the three videos available on the Shakers Anonymous website

  • Referred a friend to the website to access videos or links for more information regarding benefits of exercise

  • Has created a new goal for the upcoming month

    • Goals are written and tracked on the sheet provided in Appendix D

  •  Shared one “Peaks and Valleys” story during the Shakers Anonymous meeting If members meet 4 of 5 requirements, preceptors are entitled to granting that participant a certificate of accomplishment titled

“Star of the Week” https://drive.google.com/file/d/1Gabx3hvzH0JiFvnfN2KgBYtXaN-z3CrP/view?usp=sharing

The American Parkinson Disease Association (APDA) is the largest grassroots network dedicated to fighting Parkinson’s disease (PD) and works tirelessly to help the approximately one million with PD in the United States live life to the fullest in the face of this chronic, neurological disorder. Founded in 1961, APDA has raised and invested more than $185 million to provide outstanding patient services and educational programs, elevate public awareness about the disease, and support research designed to unlock the mysteries of PD and ultimately put an end to this disease. To join us in the fight against PD and to learn more about the support APDA provides nationally through our network of Chapters and Information & Referral (I&R) Centers, as well as our national Research Program and Centers for Advanced Research, please visit us at www.apdaparkinson.org.

The Brian Grant Foundation

The Brian Grant Foundation provides proven tools to improve the well-being of people with Parkinson’s. BGF was established in 2010, following Brian’s diagnosis in 2008 at the age of 36. Though there is no cure for Parkinson’s, exercise, nutrition and a supportive community can help manage symptoms, maintain overall health and prevent other serious illnesses.

RESOURCES FOR CARE PARTNERS

When one person in a couple or family is affected by Parkinson’s disease, the other family members live with it as well. To keep your care partnering relationship healthy and balanced, it’s important that the care partner finds time to take a break from care partner duties, has some outside interests and has others they can turn to for support and resource information.

Parkinson's Foundation Caregivers Forum 

APDA Education For Care Partner's

Fox Foundation Care Partner's Role

Dance for PD® offers internationally-acclaimed dance classes for people with Parkinson’s disease in Brooklyn, New York and, through our network of partners and associates, in more than 300 other communities in 25 countries.  In Dance for PD® classes, participants are empowered to explore movement and music in ways that are refreshing, enjoyable, stimulating and creative. Launched as a non-profit collaboration between the Mark Morris Dance Group and the Brooklyn Parkinson Group, the Dance for PD® program also provides teacher training, creates innovative instructional media, and nurtures relationships among other organizations so that classes based on our model are widely available. Evidence from 38 peer-reviewed scientific studies serves to underpin the effectiveness and benefits of the Dance for PD teaching practice.

The Michael J. Fox Foundation

Here. Until Parkinson’s isn’t.

Even in the face of tremendous challenges, our promise to push Parkinson’s research forward remains steadfast. We’re problem-solvers and we’re optimistic.

The Fox Trial Finder

Medications and Treatments

Parkinson's 1010

Glossary of Parkinson's Terms

The Parkinson's Foundation

We have everything you need to live better with Parkinson’s. Support our mission to improve care and advance research toward a cure.

 

The Parkinson's Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson's community.

PD Aware Care Kit

Three out of four people with PD in the hospital don’t receive their medications on time and have a 1 in 4 chance of complications because of medication errors. The Aware in Care kit includes tools and information that will help people with Parkinson's and their families plan for the next hospital stay. Learn more about the kit

VA Benefits For Parkinson's

Parkinson's Disease and Agent Orange

Veterans who develop Parkinson's disease and were exposed to Agent Orange or other herbicides during military service do not have to prove a connection between their disease and service to be eligible to receive VA health care and disability compensation.

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